The PKU Adult Program provides information and support for adults living with PKU. Adults with PKU face many challenges. The program provides a one-stop resource for adults seeking to improve their quality of life. This is the only program composed of a national network of adults with PKU, their families, clinicians, and industry leaders to address the variety of needs of adults . Feb 01, · Treatment of phenylketonuria (PKU) consists of restriction of natural protein and provision of a protein substitute that lacks phenylalanine but is enriched in tyrosine. Large and unexplained differences exist, however, in the tyrosine enrichment of the protein birast.xyz by:
If you as an adult with PKU choose to return to recommended treatment, many of the emotional, medical, and intellectual difficulties can be greatly decreased if blood phenylalanine levels drop to less that 10 mg/dl. The resources of the Adult PKU Program are available to you should you decide to resume recommended treatment. Get help with PKU management by involving your care team. Managing PKU through regular visits with a care team is key. Use the search bar to enter your 5-digit ZIP Code to find the PKU clinics closest to you.
My Pku Journey: with Palynziq. likes · 4 talking about this. I am a 41 yr old adult with PKU. I am attempting, for the first time to blog my journey as I begin the NEWEST treatment . BioMarin, pioneer in rare disease treatments for phenylketonuria (PKU), received FDA approval of a label expansion to increase the maximum allowable dose of 60 mg with Palynziq® (pegvaliase-pqpz.